support – Page 15 – thelifeididntchoose

Grief and Grace:What I Need from Friends and Family

You cannot possibly know that scented soap takes me back to my son’s apartment in an instant.

You weren’t there when I cleaned it for the last time, boxed up the contents under the sink and wiped the beautiful, greasy hand prints off the shower wall. He had worked on a friend’s car that night, jumped in to clean up and was off.

He never made it home.

So when I come out of the room red-eyed, teary and quiet, please don’t look at me like I’m a freak.

Please don’t corner me and ask, “What’s wrong?” Or worse-please, please, please don’t suggest I should be “over it by now”.

If you were reading a novel or watching a movie, you’d show more grace.

You would nod in understanding as the main character made choices that reflected the pain of his past. You would find his behavior perfectly predictable in the context of a life lived with a broken heart.

I can’t control what makes me cry. I can’t stop the memories flooding my mind or the pain seizing my heart.

I might be OK one minute and the next a blubbering mess. Grief doesn’t mind a schedule.

But there are some things you can do to help:

If you are aware of the circumstances around my child’s death, be thoughtful when highlighting similar situations in conversation, in movie choice, in recommending books or news stories. I bump into reminders all the time, I don’t need to have them forced upon me.
It can be particularly hard to celebrate milestones in another child’s life when that child is about the same age as the one I buried. Feel free to invite me, but give grace if I choose not to attend a birthday, graduation or wedding. I’m doing the best I can and I don’t want to detract from the celebration so sometimes I bow out.
Ask me if, or how, I would like my missing child included in family gatherings. Sometimes I want his memory highlighted and sometimes I want to hold it close like a personal treasure. It might be different one year to the next. Just ask.
Be sensitive to the calendar. Make a note of my child’s birthday, heaven day, date of the funeral or memorial service-these are important dates for me and they will be as long as I live. In the first months, maybe for years, each month is a reminder that I am that much further from the last time I heard his voice, hugged his neck or saw his living face. Those days are especially hard.
Don’t pressure me to move faster in my grief journey. And don’t interpret a single encounter as the measure of how I’m doing. Be aware that it is often a two-steps-forward-one-step-back kind of experience. It is MY experience and will go as fast or as slow as it does. I can’t even hurry it along even though sometimes I am desperate to do so.
Understand that the things I may share don’t paint a total picture. There are pains too deep, thoughts too tortuous, experiences surrounding my son’s death and burial too hurtful for me to speak aloud.

I admit that I never thought of any of these things until it was MY son missing.

But now I think about them all the time–not only for my sake, but for the sake of others like me. I try to walk gently and kindly, extending grace and love.

And honestly, that’s really all I want from anyone else-grace, abundant grace.

I will be weepy when it’s inconvenient. I will react when you can’t fathom why. I will stay away when you want me to come near. I will make choices you don’t understand.

I am truly sorry.

But child loss is not something I chose for myself, it was thrust upon me.

I am walking this path the best I know how.

When you extend grace and love me through the roughest places it makes all the difference.

Thanks for Listening!

One year ago today I began sharing my grief journey publicly on this blog.

You can read that first post here.

It was (and still is) scary to expose my thoughts and feelings to a wider audience than just the pages of my personal journal.

I’m never certain that what is helpful for me is necessarily helpful for anyone else. But in writing it down I find that I am able to sort through things better than when I leave it bouncing around in my own head space.

I decided upfront that I would be as honest as possible about what I felt and how I was coping. I wasn’t sure if I would post only a few times or a lot, if it would turn into a day-by-day diary or a more sweeping revelation of deeper things.

I think it’s kind of been both at times.

And here we are, 366 days (it was a leap year) and 355 posts later and I’m still here and you’re still listening.

I don’t claim to have any special gifting or knowledge or ability. I am simply one mama whose love for both her child in heaven and her children still here demands that I speak out.

My heart is full of love and pain.

And my heart has been blessed beyond measure by those who read and share what I have written. I’ve met-in person and virtually-many bereaved parents who are helping me as I continue down this road.

I am so very thankful for each one.

I pray that for those who read these words and know the pain of burying a child, I am speaking things you may think or feel but are not willing or able to express.

And I pray that in hearing them spoken aloud, you are affirmed and encouraged that you. are. not. alone.

Dominic matters.

Your child matters.

It’s not only OK but absolutely necessary to admit that life after child loss is a struggle. It is also just fine to take your time working through the pain and sorrow and overwhelming changes child loss brings.

For those who read my posts and do not share this pain, I pray you gain insight into what bereaved parents feel and how burying a child changes EVERYTHING.

I hope you are better equipped to offer the ongoing support we need and crave. I hope you learn that this is not something we have chosen, it is something that happened to us.

And I pray that all of us will be more willing to extend grace, mercy and love to one another.

Words are not neutral.

They bring life or death.

They wound or heal.

May each of us be an instrument of healing for someone’s hurting heart.

What Helps and What Hurts

I am committed to continue to trust Jesus and to look to the Word of God for my hope and direction in this life and in the one to come.

I speak truth to my heart through Scripture, worship songs, testimonies of others who have gone before and remaining in community with other believers.

But I’ve yet to reach the place where I can plan on most days being better days rather than hard ones.

I’m trying.

And I’m working to tease out the influences that make a difference-both the ones that help and the ones that hurt.

So here’s the list so far:

WHAT HELPS

Starting the day with Bible reading
Writing out a verse or two that speaks hope to my heart
Listening to worship music
Feeling well-less physical pain translates to an overall sense of well-being
Having a plan for the day-even if it is simple and created in broad strokes, knowing what I plan to do gives me a reason to get up and get going
Seeking companionship with other believers either via Facebook groups, telephone calls, in person get togethers or messaging.
Allowing myself a set time to grieve-cry, pray, lament, or whatever-then moving on with the day
Mixing up physical activity with rest-changing my body position often reorients my attitude.
Striving to get proper sleep, eating good food (not junk and not mindlessly), exercising and stretching.
Crying-if I need to cry I’ve found allowing the tears to fall is much better than fighting them off all day.
Retreating when necessary-if I find a situation is too much for me to handle, I give myself permission to retreat. Most things can be done another day. Sometimes just granting myself permission means I have the courage to press on and face it.
Planning for hard things. If I know I’m going to have to face a hard thing, then I try to plan it. I prepare myself by thinking through (as much as possible) various outcomes. I’m more prepared and usually it goes better than I anticpated.
Not overscheduling my days/weeks-it is harder than it used to be to get going in the mornings so I take that into consideration when making appointments. If I have a busy day on Monday, I will try to make Tuesday open and relaxed. Having space between commitments gives me time to recoup and minimizes anxiety.
Doing as many things via Internet and telephone as possible-I can do needful things even if I’m having a bad day if I don’t have to get dressed and go out to do them.

WHAT HURTS

Neglecting my spiritual life-if I don’t read Scripture, don’t engage with other believers and refuse to acknowledge and thank God for the blessings He still bestows-I can quickly succumb to the dark whispers of the enemy of my soul.
Ignoring physical needs-when I don’t prioritize sleep, good nutrition, adequate exercise and appropriate pain control (for my RA) then sadness is multiplied and it is so much harder to climb out of the pit of despair.
Carrying unnecessary burdens-I cannot MAKE anyone understand the pain and ongoing challenge of child loss. So when people outside my immediate grief circle question my feelings or try to make me conform to their expectations of what grief should look like and how long it should last, I have to shake it off. If it’s an important and ongoing relationship, I try to help them understand but if they choose not to or if it is a tangential relationship, I let it go. I refuse to carry the burden of others’ expectations in addition to the burden of burying my child.
Being ignored-it hurts to be ignored. It hurts when someone asks how I am yet doesn’t allow the space and time for me to answer. It hurts when I answer and they ignore my pain or dismiss it with a story or platitude or Bible verse or just don’t say anything.
Being shamed-it hurts for others to shame me by implying that I am not strong in my faith or not trusting Jesus or not hoping hard enough for heaven when I admit I still struggle in grief and still miss my son.
Disregarding my triggers: There are certain situations that I know will guarantee a breakdown, panic or a crying fit. I avoid them when I can. If I can’t-then I make a plan of escape (just in case).
Being “on display” for others-I am one woman doing the best I can to walk faithfully with Jesus through an unbelievably painful experience. I am not the Author and Finisher of your faith-Jesus is. It hurts when I feel like others are watching to see if I’ll make it, if I’ll say the “wrong” thing, if I’ll admit that I doubt. I want the same freedom others have to grow in my faith and to make mistakes and learn from them. I don’t want to be a “poster child” for anything.
Friends staying away. I know it is hard to be my friend right now. You never know what you might get when you call. But if you ARE my friend, please don’t stay away. Please reach out even when it makes you uncomfortable. A good word at the right moment is often the difference between a very bad and very lonely day and a pretty good and generally hopeful one.
Hiding my sorrow-when I try to pretend I am stronger than I really am or when I try to hide my tears it takes so much energy and makes me so less capable to do the other things life requires.

These are just some of the things that help/hurt me in my journey. I would love to have others share what helps/hurts them in theirs. There’s strength in community.

Leave your thoughts in the COMMENTS below!

June Challenge: Eight Legs and Eternity

Day Eight of Kathleen Duncan’s June 1-30 challenge.

The prompt: Write a story with eight legs or turn the eight sideways and use “infinity” (eternity) as your prompt.

Eternity is a long time.

Just try and wrap your mind around it.

But when you bury a child, that’s what you think about-the forever that comes when he left his earthly body and entered the Presence of Jesus.

So many hard days followed, so many tears, so much pain. I wanted to escape to eternity with Dominic.

I would be there eventually anyway, why not now?

But it’s not up to me to determine when I go. So I remain, and try to find a way to make the days count, be useful and stay hope-filled.

And eight legs have helped me stay rooted in the “now” when my heart longs to be in “forever”.

That first Thanksgiving after losing Dominic in April, we visited our oldest son and his wife in West Virginia where she was a vet.

Touring Lillie’s office, we were introduced to two fluffy, orange kittens that had been abandoned by the road and brought there in hopes of finding a home.

One look and I was smitten.

It took less than five minutes to decide to take them back with us to Alabama.

Who could resist those faces?

At dinner that night, we brainstormed possible names. I still have the list in my notes on my phone: Kit Kat, Pumpkin, Scratch and Sniff, Cheetos, Doritos, Tostito.

We decided on names that reflected their roots- Moonshine and White Lightning.

After all, West Virginia is home to as many stills as hills.

Once we got back, their needs became part of my morning routine-a constant and undeniable reminder that I HAD to get out of bed. And they made me laugh!

Here is Lightning soaking up the sun in front of the picture window.

Moonshine’s personality is more relaxed-why sit when you can lay down?

I used to be able to pick up both of them with one hand, now it takes two hands to pick up one of them!

They have grown into good companions, great mousers, soft lap warmers and serious purr machines.

I’m very glad these eight legs live in my house.

They’ve been excellent therapy for my hurting heart.

Benefits of Pet Therapy:

lowers blood pressure

improves cardiovascular health

releases endorphins (oxytocin) that have a calming effect

diminishes overall physical pain

the act of petting produces an automatic relaxation response, reducing the amount of medication some folks need

lifts spirits and lessens depression

decreases feelings of isolation and alienation

encourages communcation

provides comfort

lowers anxiety

creates motivation for the client to recover faster

reduces loneliness

A Strong Tower

In the days when battle was conducted face-to-face, before missiles were guided from planes and ships and game consoles continents away-a fortified tower, a castle or a deep cave were places of refuge and safety.

Death could be imminent, but if a harried combatant could make it to one of these places he could catch his breath, regroup, plan a counter-attack.

Grief feels like a battle.

And I often find myself looking for refuge. I need a safe place to find my strength again.

Praying is still very hard for me.

I know my Father is listening, I know Jesus is with me but I don’t really have much to say. The one great cry of my heart cannot be answered, my son will not return.

So I run to the promise that is His Name.

When I can’t even whisper a prayer, I speak peace to my soul by declaring Who He is.

Years ago I memorized this verse:

The name of the Lord is a fortified tower; the righteous run to it and are safe. Proverbs 18:10 NIV

And it has been a light in the darkest nights of this dark, dark journey.

I know many who read my blog are fellow bereaved parents and they are battling too. They are struggling to find a way to face another day without their beloved child. They hurt and they long for the comfort of hearing God’s voice in the Valley of the Shadow of Death.

Prayer might be hard for them too.

I want to speak courage to your heart.

I want to whisper hope to your battered soul.

When you can’t speak, when you feel defeated, when you are running for your life from the enemy who would have you believe that there is no safe place, remember that God sees you. He is your refuge.

His name is powerful and He is mighty to save.

Many of us have memorized the twenty-third psalm. We don’t see it in English, but these verses contain several names of God.

At the start of this passage, God reveals Himself as Jehovah-Roi: “The Lord my Shepherd”.

He is the God Who sees, He is the God Who is present, He is the God Who guides me even here in this awful valley.

So I declare the truth that God is my Shepherd to whoever and whatever is chasing me.

I declare that God is with me to my weary soul even when I cannot feel His Presence.

I shout, “God is my Shepherd” to the darkness and run for safety to His arms.

Dragging Grief into the Light

During the course of my lifetime I have seen many topics dragged from behind closed doors out onto the stage and under the public spotlight.

Frankly, some of them could have remained in darkness as far as I’m concerned.

But there is something still taboo in polite conversation–something hushed with awkward silence should it ever be spoken aloud in a crowded room–mention GRIEF and eyes drop to the floor or someone hastily throws an arm around you and says, “There, there–it’s going to be alright.”

I don’t blame them.

In my growing up years I don’t remember anyone speaking about death and grief for longer than the time it took to go to a funeral home visitation and stand by the grave as the casket was lowered in the ground. People were designated by their loss: He was a widower; she lost a child; her mother died when she was young.

But what came AFTER the loss–not a word.

We need to talk about it. We need to educate ourselves about it. Because, like my EMT son says, “No one gets out of here alive.”

You WILL experience grief in your lifetime.

I pray that the people you lose are full of years and ready to go–that you get to say “good-bye” and that all the important things have been said and done so that you aren’t left with extra emotional baggage in addition to the sorrow and missing.

But you never know. Neither you nor I are in control.

And even in the one place where it would seem most natural to talk about life and death and grief and pain–our churches–it still makes those who are not experiencing it uncomfortable.

Yes, there are grief support groups. And, yes, they are helpful in ways that only a group made up of people who understand by experience what you are going through can be.

But much of life is spent rubbing elbows with folks unlike ourselves, with parents who know the fear of losing a child but not the awful reality. And just a little bit of openness, a little bit of education and a little bit of understanding would make such a difference.

So for the next few days I am going to be posting about the grief process itself. About what grieving parents experience and how friends, family, co-workers and churches can support them.

If you are a grieving parent, I hope these posts will serve as a launchpad for you to have conversations with your own friends and extended family. If you aren’t a bereaved parent, please commit just the few minutes it takes and consider how you might support someone in your circle of influence who has lost a child.

We don’t want pity.

We aren’t looking for special accomodations that single us out and mark us as “needy”. But we long for understanding and compassion and the opportunity to tell our stories.

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