presence – Page 3 – thelifeididntchoose

Healing? Curing? Same Thing?

Healing and curing are not the same thing.

Healing is a process that takes as long as it takes and may never be complete this side of eternity. It’s a folding in of the hard parts of my story, an acknowledgement of the way I am changed because of the wounds I’ve received. It involves scar tissue and sore spots and ongoing pain.

To be cured is to be free of the effects of disease or injury.

And there is no cure for child loss.

I will never be free of the effects of burying a child this side of Heaven.

I did not understand the difference until it was my heart bearing an incurable wound.

The thing about healing, as opposed to curing, is that it is relational. It takes time. It is inefficient, like a meandering river. Rarely does healing follow a straight or well-lit path. Rarely does it conform to our expectations or resolve in a timely manner. Walking with someone through grief or through the process of reconciliation requires patience, presence, and a willingness to wander, to take the scenic route.

~Rachel Held Evans, Searching for Sunday

It really IS all about relationship.

Relationship first with the Living God through His Son, Jesus.

The ongoing life-giving ministry of His Spirit calls courage to me as I travel this Valley and sings hope to my heart when I cannot hear anything else.

He will not leave me in my distress.

He does not abandon me in my darkest hour.

But it is also about relationship with others.

Relationship with those willing to meander with me along this unlit and winding path. They are the ones who give me courage to carry on. They are the ones who lift me up when I am unable to lift myself and who lie down with me when even their best pep talk is not enough to get me off the floor.

They have listened to me tell and retell my story.

The first time I told it, I didn’t have a clue what to say or how to say it-what to leave in, what to leave out. How do you condense a life-sized earthquake to a novel, much less a few sentences?

But I find as I practice telling my story, it is healing.

Sometimes it’s as if I speak without my mind being engaged and listening, I have an “aha” moment-suddenly recognizing a new insight and another place that needs work or has received healing.

I’ve learned that there is no substitute for companionship on this journey.

My healing depends on the faithful Presence of my Shepherd

AND

the faithful presence of friends who refuse to leave even when it seems we are lost in the wilderness of grief together,

Subtle Disapproval

I mention that today is a hard day to someone who knows my story and the words fall with a loud “thud!” between us.

I don’t know whether to pick them up or not and she isn’t having anything to do with them.

So I move on to another topic. Clearly this one isn’t going anywhere.

There are lots of ways to send messages of disapproval. You can “just say NO” like kids are told to do in anti-drug and anti-bullying campaigns. You can rant and rave and argue and rail against someone or something in person and on social media.

Or you can just ignore someone when they spill what matters to them like an offering on the ground at your feet.

The opposite of love is not hate.

It’s indifference.

The opposite of support is not opposition.

It’s looking the other way.

Strangers line streets to cheer marathoners on-offering cups of water and words of affirmation.

“You can do it!” “Keep going!” “You are more than half-way there!” “Don’t give up!”

And yet many of us are running the race of our lives without a cheering section.

I get it–you are so very tired of the fact that I am so very tired. I have worn out the welcome mat to the door of your heart. It DOES get old when I bring the same baggage with me each time we talk.

Trust me, I’m working hard at unpacking it. I’m doing all I can to lighten my load and what I ask you to help me carry.

But it is a slow, slow process.

And every time I need help or encouragement and don’t get it, another brick is added to the suitcase.

You might think you are helping me learn to ignore the pain by ignoring my mention of it but I don’t have that luxury.

It’s my heart wound, not yours.

It’s my child buried, my child not here, my child gone from sight-how exactly should I ignore that? Which of your children could you put away for a lifetime and forget was ever here?

If you want to help me lighten the load,

let me unpack my pain by telling my story.

If you want me to finish the race strong,

cheer me on.

Twelve Things I Love to Remember

It rolls around every month-the twelfth-that glaring reminder that on this day “x” number of months ago, I woke to the news Dominic was never coming home again.

This month is 28. Twenty-eight months-more than 28 moon cycles-over two years.

I don’t cry all day on this monthly reminder anymore-although I used to. And I have tried various ways to redeem it.

This month I decided to share twelve things I love to remember about Dominic. Maybe some things even his good friends didn’t know:

Dominic HATED to lose. When he was a little boy we participated in a monthly skate session at a local roller rink. At the end of the skating time (to encourage kids to quickly take off and return their skates) there were foot races broken up by age and gender. Poor Dom-he was built like a gymnast not a runner and he. just. couldn’t. win. EVERY TIME, he’d come stomping off the floor, nearly in tears because he didn’t win. So many things came easily to him but this didn’t and it frustrated him.
Dominic finished his undergraduate degree in three and a half years-double major-graduated Magna Cum Laude and delivered the undergraduate address for his graduation ceremony. I love that he was so goal-oriented and persevered even when it was really hard.

He could subsist on rice and broiled chicken breasts when he was trying to work on muscle definition (he rarely missed a day at the gym) but when he was a little kid he hid candy along the side of his mattress. He remained a sucker for a good sugar binge, especially when stressed during finals.
Dominic was scared of needles. His PCP finally shamed him into getting a needed tetanus shot but he hated it!

He had a weakness for puppies, kittens and kids.

If it had strings, Dominic could play it-mandolin, guitar, bass, banjo. And if you could coax rhythm out of it, he could make it sing. Never silent, never still-always making some kind of music. Boy do I miss that!

Dominic never took “no” for an answer. He would doggedly pursue anything and anyone if he thought it was a valid case or course of action. He had an entire university policy overturned because he was able to demonstrate to the administration that its application was faulty. That’s part of what would have made him a great lawyer…
He was an adrenaline junkie. He was the one that wanted to jump out of an airplane so he did.

As an undergraduate he had a part-time job as a lifeguard at the student recreation center. He loved the job but hated swimming. He was an amazing athlete.
Although he was an excellent orator, he didn’t really talk until he was almost three and had a speech impediment until he was into second grade. You would never have known it if you met him as an older teen or adult.

Oh! Dominic was stubborn! I remember one afternoon when I had given an assignment to draw a leaf in his nature journal. He sat, without drawing, for over an hour because he insisted he couldn’t draw, wouldn’t draw and didn’t see the point in the assignment. I finally caved and said he could trace the leaf. I still have that picture as a testimony to his mulish side.
Dominic had a great sense of humor and nothing was out of bounds if it made someone laugh.

I am so thankful God made me his mama. I love every memory I have. I really wish we could make more…

It Changes Everything

Part of the reason I share my story is to provide insight for people who haven’t lost a child into the hearts and lives of those who have.

But mainly it is to be a voice for and to encourage other parents walking this valley by letting them know they aren’t alone, their feelings and experiences are perfectly normal and that just as welcoming a child into your family is a life-altering event, saying good-bye to a child is a life-altering event.

We do not expect a mom to “get over” the changes having a baby brings to her everyday experience, and we should not expect a bereaved mom to “get over” the changes burying one brings either.

Want to help? Read: Loving the Grieving Heart

Please-Just. Listen.

It’s hard-it’s hard to stay the words that come unbidden to mind and threaten to fly out of your mouth.

It takes restraint. And patience. And wisdom.

But when I finally open my locked box of hurt and pain and memories and heartache-please, please-just listen.

I know better than you that nothing anyone says, or does or hopes to do can change the facts.

Dominic’s not here-he’s there.

And I also know that makes you feel helpless. I feel helpless too.

I’m not looking for pity. I don’t want attention. I have no desire to make you sad.

I have to let it out or I’ll burst. If others saw the fullness of emotions brimming in my heart they would stand amazed that I could push them down and keep them inside so much of the time.

But speaking my sorrow is empowering.

It provides a witness. It means that he matters, that I matter and that this awful reality is recognized by someone other than just me.

When you shut me down or shut me out I. am. crushed.

Again.

In the end, you can walk away. You have another life to go back to. My pain is tangential to the reality of your every day.

It is central to mine.

So, please-encourage my heart with compassionate presence and just listen.

Who Needs Hope Unless They are Broken?

The gospels don’t hide the fact that Jesus came to a broken world.

Religious leaders who were supposed to be guarding and guiding God’s people were instead protecting positions of power and leading others astray.

The masses were beaten down-helpless under the burden of Roman occupation and hopeless that they could ever “measure up” under the system of customs and laws that had been imposed by the Pharisees.

Jesus spoke truth to this reality, He didn’t deny it.

Jesus looked brokenness in the face and promised redemption and restoration.

But He admitted that in THIS world, the one we walked on, there would be tribulation. He didn’t promise a pain-free existence, He promised His Presence in the midst of pain.

And that is the power of the cross-that an instrument of torture became a symbol of hope.

What the enemy meant for evil, God used for good.

When we try to soft-pedal the struggles of life, when we try to shape our stories into victorious narratives with tidy endings, when we deny the presence of pain, we diminish the power of the cross.

Adjusting to the Darkness

A precious friend sent a small book through the mail just after we buried Dominic. Lament for a Son-the title was enough to draw me in-and the pages ministered to my soul.

Here was someone who, like me, was wailing for what was lost.

Someone who was declaring out loud what my heart harbored in secret: that the darkness of child loss is unrelenting and horrible.

Will my eyes adjust to this darkness? Will I find you in the dark – not in the streaks of light which remain, but in the darkness? Has anyone ever found you there? Did they love what they saw? Did they see love? And are there songs for singing when the light has gone dim? Or in the dark, is it best to wait in silence?
Noon has darkened. As fast as they could say, ‘He’s dead,’ the light dimmed. And where are you in the darkness? I learned to spy you in the light. Here in this darkness, I cannot find you. If I had never looked for you, or looked but never found, I would not feel this pain of your absence. Or is not your absence in which I dwell, but your elusive troubling presence?

Nicholas Wolterstorff, Lament for a Son

I comprehend Wolterstorff’s question-“Will I find you [God] in the dark-not in the streaks of light which remain, but in the darkness?”

I had long followed the light of Christ. Walked boldly even when the light was very dim. Trusted the smallest flicker of a tiny candle of hope when night closed in and began to speak fear to my heart.

But this-this unrelenting, palpable darkness that swallowed any light and even the promise of light-this was new to me.

I understood David’s cry:

“How long, O Eternal One? How long will You forget me? Forever?
How long will You look the other way?

How long must I agonize,
grieving Your absence in my heart every day?”

Psalm 13:1-2a VOICE

But time is helping my eyes adjust to the darkness.

I am learning to feel my way around in this new room, to navigate days that feel more like night.

I know in my heart that this night will not last forever.

I will be able to say:

“But I have trusted in your steadfast love;
my heart shall rejoice in your salvation.

I will sing to the Lord,
because he has dealt bountifully with me.”

Psalm 13:5-6 ESV

God has promised that Jesus is the Light and even this darkness cannot overcome Him.

In the beginning the Word already existed. The Word was with God, and the Word was God. He was already with God in the beginning. Everything came into existence through him. Not one thing that exists was made without him. He was the source of life, and that life was the light for humanity. 5The light shines in the dark, and the dark has never extinguished it.

John 1:1-5 GWT

Job’s Comforters

Most of us know the story of Job.

A righteous man, singled out by Satan to be tempted, ends up bereft of his children, his fortune and his health.

Sitting in the dust, scraping the pus from his wounds, three friends join him in his misery.

And they make it worse.

It’s hard to imagine that after burying a child, anything that people say or do can make you feel worse-but it is possible.

I had many friends and family that brought genuine comfort to my spirit.

They were the ones who spoke courage to my battered heart and helped me face another day when all I wanted to do was crawl under the covers and pray that the sun refused to shine. And I will never be able to repay them for that kindness.

But there were others….people who wanted to make sense of a senseless tragedy.

People who wanted to equate the loss of their aged aunt, their job, their (fill in the blank) with the unexpected, sudden loss of my perfectly healthy son.

And some folks kept poking around for details, for tidbits of information surrounding his accident like chickens scratching in the dirt.

Then there were the ones who tried to use human wisdom to fit things into their version of God’s “greater plan”.

It was very painful at first to fend off what felt like attacks. It was hard to ignore the additional burden of careless words or thoughtless actions.

But at this point in my grief journey I think I’ve figured out some of what motivates people who follow in the footsteps of Job’s comforters.

While I, the one who suffered loss, knew immediately and irrevocably that I WAS NOT IN CONTROL–bystanders and onlookers were still trying to preserve the illusion that they were.

They were looking for a clue, for a pattern, for a reason so that they could avoid the same fate.

If it’s possible to map a path to what led to my son’s death, then they will choose a different route.

If danger lurks in one direction, they will head the other way.

And that’s really what Job’s comforters were trying to do-they were attempting to fit Job’s experience into a grid they could understand.

They were struggling to align their concept of God, of righteousness and fairness with what they saw with their own eyes.

Surely Job must be hiding something.

Surely he wasn’t as righteous as he appeared.

Surely bad things don’t happen to good people.

Because, really, if they do, none of us are immune.

If doing the right thing, being careful, being “good” doesn’t protect you, then the world is a much more frightening place than we can imagine.

Believe me-I get it. Having lost one child, I would do ANYTHING to guarantee that it didn’t happen again.

But newsflash: We are not in control. We cannot guarantee outcomes. We do not determine our days.

God does.

And His ways are higher than our ways. His plan is bigger than mine.

Job asked God, “Why?”

God never answered Job’s questions.

Instead He invited Job to consider the great gap between himself and the God Who made him.

And faced with undeniable evidence, Job relented:

Then Job replied to the Lord:

I know that You can do anything
and no plan of Yours can be thwarted.
You asked, “Who is this who conceals My counsel with ignorance?”
Surely I spoke about things I did not understand,
things too wonderful for me to^[b] know.
You said, “Listen now, and I will speak.
When I question you, you will inform Me.”
I had heard rumors about You,
but now my eyes have seen You.
Therefore I take back my words
and repent in dust and ashes.

Job 42:1-6 HCSB

Life at the Intersection of Desire and Self-Control

Maybe you can relate: It is easier to do without if what I want isn’t close enough to tempt me.

I don’t shop if I don’t want to spend. I don’t get donuts if I don’t want to eat sugar. I don’t have soda in the house if I don’t want to drink carbonated soft drinks.

It’s much harder to deny my desires when what I long for is within reach.

I have practiced the spiritual discipline of fasting on and off for over a decade. And I have learned a great deal about myself, about desire and about how very weak I am, in my own strength, to continue long on a path of self-denial. Who can resist chocolate when it’s right there in front of you???

When I perceive that God is calling me to give up food or something else for a span of time to focus on Him and on spiritual growth, I can prepare myself.

I can pick a date. I can arrange my home and schedule and commitments to accommodate what I know will be the challenges associated with the battle that is to ensue.

But there is a difference between choosing to fast and being forced to starve.

For those who live in parts of the world overrun by famine, choice has been removed. They don’t go without food because they desire to exercise personal or spiritual discipline–it has been decided for them. And many times, there is not one thing they can do about it except to hang on and try to survive.

Grieving my son feels like an odd and uncomfortable mix of both scenarios.

I certainly had no choice in the matter–I was not consulted, prepared or given any warning. And he is gone. Gone, gone, gone.

Yet I am surrounded by memories, physical connections and constant reminders of the one I miss.

I must live everyday at precisely the intersection of desire and self-control.

No, I cannot “have” him back. When I am thinking correctly, I don’t want him back here in this broken world with broken people. If what Scripture says is true (and I preach to myself that it is) then he is experiencing joy and beauty that fills his heart so full there’s no room for missing me.

But the heart wants what the heart wants.

And my heart wants my family circle whole again. My heart wants to see how Dominic would use his gifts and talents to impact the world. My heart wants my surviving children and my husband and my extended family not to have to carry this heavy grief load and to be free to live life without the intimate knowledge of the darkness of death and loss.

Every day I am forced to acknowledge my heart’s desire and then exert the self-control necessary to get out of bed and participate in daily life.

It takes so much energy. I am often tempted to give up and give in.

This fast is the most strenous ever thrust upon me.

I know in my head my desires will never be fulfilled this side of heaven. This passionate longing won’t end until I am reunited with Dominic and ultimately, all my loved ones in the Presence of Jesus. And I have no idea when that might be.

So I must focus my thoughts and fix my heart’s affection on the promise of God in Christ: that He will redeem every broken thing, that He will restore every lost treasure and that resurrection will rule.

Energize the limp hands,
    strengthen the rubbery knees.
Tell fearful souls,
    “Courage! Take heart!
God is here, right here,
    on his way to put things right
And redress all wrongs.
    He’s on his way! He’ll save you!”

Blind eyes will be opened,
    deaf ears unstopped,
Lame men and women will leap like deer,
    the voiceless break into song.
Springs of water will burst out in the wilderness,
    streams flow in the desert.
Hot sands will become a cool oasis,
    thirsty ground a splashing fountain.
Even lowly jackals will have water to drink,
    and barren grasslands flourish richly.

Isaiah 35:1-7 MSG

curating grief

Most of us have taken a class or two in literature–we read other people’s writing and sit around discussing “what it really means”. My husband has always scoffed at the notion that anyone but the author knows that.

Me–I love books, plays and poetry so I’ve spent a lifetime reading and trying to interpret the meaning of others’ words.

But now I find I’m leaning more toward my husband’s point of view.

One of the challenges I face as a grieving parent is finding that other people want to interpret my experience for me.

They want to curate my mourning like a museum exhibit–arrange and highlight and sift through the days before and after burying my child and lay my experience out in some way that makes sense to them.

Sometimes it is subtle and involves mentioning memories that cast the missing child in a positive light–extolling his virtues and highlighting his achievements–as if noting how wonderful he was when walking this earth makes it easier to let him go.

Other times it is direct and forceful–“Everything happens for a reason.” Or, “He wouldn’t want you to be sad.” Or, my personal favorite, “You know he’s safe with Jesus and you will be together again one day.”

While my theology rests firmly on the finished work of Christ, my heart longs for the physical presence of my son. So none of these platitudes are helpful and they only draw a sharper contrast between my hope and my experience.

Let me just be blunt: unless you have buried a child, you do not know how it feels.

Full stop.

No debate.

I am grateful for your support, for your prayers, for your kindness, compassion and love.

But please do not tell me how this all makes sense or fits together in God’s plan or will someday “make a difference”.

I invite you to travel with me, to share stories (good and bad) of my son with me, to sit with me and look at the memories, feel the sorrow and experience the missing.

And, if you are brave, you can ask me what it means.

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