grief – Page 333 – thelifeididntchoose

This is NOT Forever…

One breath

One glance

A single tiny detail transports me from here to there.

Takes me from doing alright to devastation

Changes daylight to dark and grips my soul with terrifying pain.

If I didn’t have hope to cling to

If I didn’t know that every promise of God in Christ is yes and amen

If I didn’t trust that my tears are recorded in His book,

my name written on His hands

and my life secure within His own I’d let the darkness take me under.

Breathe in

Breathe out

It will pass

THIS is not forever.

Forever is waiting for me

Dominic is already there-

Tomorrows without end.

No tears

No fears

No goodbyes

Open arms.

A Little Extra Grace

Each day I am reminded by sights, smells, sounds and memories that Dominic is in Heaven and not here.

But there are moments and seasons when his absence is particularly strong-when I can’t breathe in without also breathing a prayer, “Father, let me make it through this minute, this hour, this day.”

And that’s when I need grace-from family, friends and strangers.

Anyone who knows ANYONE that lives with loss knows that Thanksgiving, Christmas, birthdays and remembrance days are sure to be especially hard for those left behind.

What some may not know is that there are other, hidden, pitfalls on this journey through the Valley of the Shadow of Death.

For many bereaved parents the beginning of the school year is one of them.

Even though my son was long past school age when he left, that shiny penny newness and promise of another year of school, another step toward maturity and the rest of life, another marker on the road to what every parent hopes will be a beautiful future is a painful reminder that my child won’t be doing anything new here on earth.

And a little extra grace goes a long way toward making this season easier to endure.

A bit more patience as I walk slowly across the parking lot, lost in thought and unaware you are behind me trying to get on with life or park your car.
A smile when I accidentally bump my cart into yours in the grocery aisle-having just passed his favorite food or smelled coffee and been instantly transported to his finicky passion for all things caffeine
Calm responses when I jump to conclusions, cut you off mid-sentence or answer a query with a less-than-kind tone of voice.

Want to be especially encouraging to a parent missing their child in heaven?

A text or message or a “thinking of you” card can turn a dismal day into one full of sunshine.
Do you have a special memory or memento you could share? What a gift!

If you see us in these next few days and weeks as thoughts and hearts turn from summer to a new semester, be patient-we are once again reminded that our child’s earthly story has ended.

It’s a hard truth to embrace.

Every. time.

Move On Already!

How long has it been? A year, two, eighteen or twenty-five?

When. are. you. going. to. move on?

Aren’t you over talking about their birth story, their childhood, their school years, their spouse, children, moves and career? How many funny stories or sad recollections do I have to listen to?????

I mean, really-it’s been soooooooooo00 long since they were BORN!

Sound’s ridiculous, doesn’t it? It IS ridiculous.

We don’t expect parents to “move on” or “get over” their living children.

Why, why, why do we expect parents to move on or get over the ones they’ve had to bury?

My love for each of my children, on earth or in heaven, is life-long.

I wrote about it here: Love: The Reason I Grieve

Can’t Hide the Ugly

Yesterday I was impatient and ugly with someone I love.

When you are hurting, physically or emotionally or physically AND emotionally, you just don’t have the energy to hide the ugly.

But the pain didn’t create the ugly-it just revealed it.

And I am sorry to say that even burying a child did not cleanse me of some ugliness I wish I didn’t have in my heart.

I keep asking God to fill me with His love, mercy and grace. And I am more full of those things than before.

But there is still plenty of (if not hate then) less-than-love, judgement and impatience. Trials don’t automatically lead to refinement or stronger faith.

Tribulation can drive someone away from God as easily as it can drive them to their knees.

If I’m not careful-if I’m not very careful-I can use my pain as an excuse for all kinds of bad behavior.

So I’m here to confess: I am so, so sorry.

I’m sorry that when my glass gets tipped, anger and bitterness spills out. I’m sorry that I’m not more faithful to extend grace when I hope grace will be extended to me. I’m sorry that speaking truth so that I prove my point and wound a heart is sometimes more satisfying than speaking truth in love.

I wish every deed I did and every word I spoke was full of life and never full of death.

I hate death. I. HATE. death.

It has taken enough from me. And I want no part of it.

Father, I want to be a beacon of light and life. Lord, make me so. Fill me to overflowing with YOUR love, YOUR life, YOUR grace, YOUR mercy. Left to myself I have no hope. But by Your Spirit, it can be so.

When all kinds of trials and temptations crowd into your lives my brothers, don’t resent them as intruders, but welcome them as friends! Realise that they come to test your faith and to produce in you the quality of endurance. But let the process go on until that endurance is fully developed, and you will find you have become men of mature character with the right sort of independence. And if, in the process, any of you does not know how to meet any particular problem he has only to ask God—who gives generously to all men without making them feel foolish or guilty—and he may be quite sure that the necessary wisdom will be given him.

James 1:2-5 PHILLIPS

What Helps and What Hurts

I am committed to continue to trust Jesus and to look to the Word of God for my hope and direction in this life and in the one to come.

I speak truth to my heart through Scripture, worship songs, testimonies of others who have gone before and remaining in community with other believers.

But I’ve yet to reach the place where I can plan on most days being better days rather than hard ones.

I’m trying.

And I’m working to tease out the influences that make a difference-both the ones that help and the ones that hurt.

So here’s the list so far:

WHAT HELPS

Starting the day with Bible reading
Writing out a verse or two that speaks hope to my heart
Listening to worship music
Feeling well-less physical pain translates to an overall sense of well-being
Having a plan for the day-even if it is simple and created in broad strokes, knowing what I plan to do gives me a reason to get up and get going
Seeking companionship with other believers either via Facebook groups, telephone calls, in person get togethers or messaging.
Allowing myself a set time to grieve-cry, pray, lament, or whatever-then moving on with the day
Mixing up physical activity with rest-changing my body position often reorients my attitude.
Striving to get proper sleep, eating good food (not junk and not mindlessly), exercising and stretching.
Crying-if I need to cry I’ve found allowing the tears to fall is much better than fighting them off all day.
Retreating when necessary-if I find a situation is too much for me to handle, I give myself permission to retreat. Most things can be done another day. Sometimes just granting myself permission means I have the courage to press on and face it.
Planning for hard things. If I know I’m going to have to face a hard thing, then I try to plan it. I prepare myself by thinking through (as much as possible) various outcomes. I’m more prepared and usually it goes better than I anticpated.
Not overscheduling my days/weeks-it is harder than it used to be to get going in the mornings so I take that into consideration when making appointments. If I have a busy day on Monday, I will try to make Tuesday open and relaxed. Having space between commitments gives me time to recoup and minimizes anxiety.
Doing as many things via Internet and telephone as possible-I can do needful things even if I’m having a bad day if I don’t have to get dressed and go out to do them.

WHAT HURTS

Neglecting my spiritual life-if I don’t read Scripture, don’t engage with other believers and refuse to acknowledge and thank God for the blessings He still bestows-I can quickly succumb to the dark whispers of the enemy of my soul.
Ignoring physical needs-when I don’t prioritize sleep, good nutrition, adequate exercise and appropriate pain control (for my RA) then sadness is multiplied and it is so much harder to climb out of the pit of despair.
Carrying unnecessary burdens-I cannot MAKE anyone understand the pain and ongoing challenge of child loss. So when people outside my immediate grief circle question my feelings or try to make me conform to their expectations of what grief should look like and how long it should last, I have to shake it off. If it’s an important and ongoing relationship, I try to help them understand but if they choose not to or if it is a tangential relationship, I let it go. I refuse to carry the burden of others’ expectations in addition to the burden of burying my child.
Being ignored-it hurts to be ignored. It hurts when someone asks how I am yet doesn’t allow the space and time for me to answer. It hurts when I answer and they ignore my pain or dismiss it with a story or platitude or Bible verse or just don’t say anything.
Being shamed-it hurts for others to shame me by implying that I am not strong in my faith or not trusting Jesus or not hoping hard enough for heaven when I admit I still struggle in grief and still miss my son.
Disregarding my triggers: There are certain situations that I know will guarantee a breakdown, panic or a crying fit. I avoid them when I can. If I can’t-then I make a plan of escape (just in case).
Being “on display” for others-I am one woman doing the best I can to walk faithfully with Jesus through an unbelievably painful experience. I am not the Author and Finisher of your faith-Jesus is. It hurts when I feel like others are watching to see if I’ll make it, if I’ll say the “wrong” thing, if I’ll admit that I doubt. I want the same freedom others have to grow in my faith and to make mistakes and learn from them. I don’t want to be a “poster child” for anything.
Friends staying away. I know it is hard to be my friend right now. You never know what you might get when you call. But if you ARE my friend, please don’t stay away. Please reach out even when it makes you uncomfortable. A good word at the right moment is often the difference between a very bad and very lonely day and a pretty good and generally hopeful one.
Hiding my sorrow-when I try to pretend I am stronger than I really am or when I try to hide my tears it takes so much energy and makes me so less capable to do the other things life requires.

These are just some of the things that help/hurt me in my journey. I would love to have others share what helps/hurts them in theirs. There’s strength in community.

Leave your thoughts in the COMMENTS below!

Retreat

As a kid our family made a yearly pilgrimage to the Gulf Coast-back when the beaches were wide open vistas, the water see-through green and the days long and unhurried.

We didn’t spend money on the “attractions” or tourist trap souvenir shops-we got up early to watch the sun rise and spent the remainder of the day back and forth between the beach and the water.

I loved to find a spot that was about waist deep and feel the waves move across my body-up and down, up and down-floating in rhythm to the world’s heartbeat.

But every so often a wave would surprise me, crash over my head unannounced and break the cycle of gentle rocking with a sputter-inducing plunge beneath the salty sea.

As long as the giant waves were few and far between, I could recover, regather my sense of well-being and continue to enjoy the water.

But when the first wave marked a change in the tide or an incoming storm and was followed by more and more of the same, I knew it was time to move toward shore.

I could withstand one or two of these but if there was no chance to catch my breath in between I was going under.

This past week has been a deluge of waves.

Waves of grief,

waves of regret,

waves of disappointment,

waves of discouagement.

No storm clouds on the horizon. No major life events or grief anniversaries-just a turning of the tide.

And so I find myself retreating a bit.

Backtracking from progress I thought I had made. Retracing steps and repeating cycles I though I had left behind.

I suspect that most of us have weeks like this.

You don’t have to bury a child to beg Jesus to make things whole again-to bring hope to your heart again-to ask Him to calm the storm and save you from destruction.

Ebb and flow. Waves and calm. Storms and sunshine. Life is made up of all of these.

I am confident that Jesus is the Peace-speaker. He can calm the wind and the waves.

I want to have faith. I want to learn to call out in trust and not doubt.

I’m working on that and waiting for His Spirit to work on it in me.

But as I wait, I’m going to have to sit on shore for awhile.

It Changes Everything

Part of the reason I share my story is to provide insight for people who haven’t lost a child into the hearts and lives of those who have.

But mainly it is to be a voice for and to encourage other parents walking this valley by letting them know they aren’t alone, their feelings and experiences are perfectly normal and that just as welcoming a child into your family is a life-altering event, saying good-bye to a child is a life-altering event.

We do not expect a mom to “get over” the changes having a baby brings to her everyday experience, and we should not expect a bereaved mom to “get over” the changes burying one brings either.

Want to help? Read: Loving the Grieving Heart

Who Needs Hope Unless They are Broken?

The gospels don’t hide the fact that Jesus came to a broken world.

Religious leaders who were supposed to be guarding and guiding God’s people were instead protecting positions of power and leading others astray.

The masses were beaten down-helpless under the burden of Roman occupation and hopeless that they could ever “measure up” under the system of customs and laws that had been imposed by the Pharisees.

Jesus spoke truth to this reality, He didn’t deny it.

Jesus looked brokenness in the face and promised redemption and restoration.

But He admitted that in THIS world, the one we walked on, there would be tribulation. He didn’t promise a pain-free existence, He promised His Presence in the midst of pain.

And that is the power of the cross-that an instrument of torture became a symbol of hope.

What the enemy meant for evil, God used for good.

When we try to soft-pedal the struggles of life, when we try to shape our stories into victorious narratives with tidy endings, when we deny the presence of pain, we diminish the power of the cross.

Wow! Just. Wow!

I’m always a little frightened to expose my vulnerable underbelly to the sometimes vicious wilderness of the worldwide web.

So when I clicked “send” for yesterday’s post I had immediate regrets-was it too personal? too negative? too self-focused?

I am overwhelmed by the comments both on the blog and on Facebook-comments of encouragement, understanding and hope-not condemnation or condescension.

All I can say is, “Thank you!”

And I was reminded that isolation is a powerful weapon in the hands of the enemy of our souls.

But godly community disarms it.

So I want to make sure that everyone who reads this blog knows about two online Facebook sites that offer hope and healing through the truth of Scripture and the Good News of Jesus Christ.

Each has a public page visible to anyone on Facebook and features posts of interest to bereaved parents and those walking with them.

While We’re Waiting is a large, well established non-profit organization. In addition to the online presence, it offers in-person support to bereaved parents through retreats and support groups. I am very grateful to the Sullivans and Browns who founded the group after experiencing child loss-their obedience has been a blessing in my life and in the lives of many other grieving parents.

Heartache and Hope is the name of a page I created as an additional resource, along with the blog, for those who are grieving a child.

To receive posts in your newsfeed, simply “like” the public page and benefit from the encouragement.

From each group’s public page, bereaved parents and grandparents can request admission to a closed discussion group.

The private discussion groups are just that-private. Only bereaved parents and grandparents may participate. It’s a safe space where everyone understands and shares your pain.

As I read and was encouraged by each comment on yesterday’s post, I thought of an image many of us have seen-a defensive circle of elephants facing outward-the vulnerable calves safely tucked in the middle.

A lion can prowl around the edges but knows it is already defeated. Nothing can penetrate the powerful perimeter that protects the potential prey.

Peter warned early believers:

Most importantly, be disciplined and stay on guard. Your enemy the devil is prowling around outside like a roaring lion, just waiting and hoping for the chance to devour someone.

I Peter 5:8 VOICE

That’s what community feels like.

I’m surrounded and protected.

That old lion-the enemy-can roar all he wants to. He can’t touch me.

For God did not choose us to condemn us, but that we might secure his salvation through Jesus Christ our Lord. He died for us, so that whether we are “awake” or “asleep” we share his life. So go on cheering and strengthening each other with thoughts like these, as I have no doubt you have been doing.

I Thessalonians 5:9-12 PHILLIPS

I am NOT Crazy!

It was just over a year after Dominic’s accident and a friend forwarded an article about odd behaviors of those who were “stuck’ in grief. Along with the forward was a little tag, “Reminds me of you.”

It hurt my feelings.

And it was inappropriate.

Because not only had I not participated in any of the listed behaviors (most of which anyone would deem odd and some that were actually harmful) but as far as I could tell, I was doing pretty good, considering.

Considering I went to bed one night with four children alive and well and woke in the wee hours of the next day to the news that one was dead.

No warning. No good-byes.

Just gone.

In the months since that day I had gotten up each morning and taken care of necessary tasks. I was not abusing alcohol, drugs or food. I was still exercising when I could.

And I was engaged with my family -working with them to put the pieces of our shattered lives and hearts back together again.

Yes, I cried. A lot. No, I didn’t like to be around crowds. I stayed at home much more than before. I struggled with anxiety when anything out of the ordinary happened. I found small talk hard to follow and forgot things (still do). And I was not participating in many “extra” activities.

I slept with Dominic’s pillows every night-it was a way to touch what was left of him.

But I was functioning.

My friend’s reaction to the fact that I was “still” grieving after a year is not all that unusual.

I speak to bereaved parents who are often made to feel by others as if they should “be over” the death of their child.

They are told to “move on”.

Or, in faith circles, to “be happy he is in heaven”.

Most mental health professionals agree that child loss is probably the most difficult loss anyone has to bear.

A simple Google search will turn up dozens of articles that support this understanding of a parent’s heartache and lifelong struggle to embrace the pain of losing a child.

Yet most people are unaware of this fact.

So I’m here to tell you-grieving mama, grieving dad-you are NOT crazy!

You are not overreacting to one of the most awful things that can happen to someone. Out of order death is devastating!

When asked about his son years after he had died, Gregory Peck replied:

As I’ve written in a previous post Am I Normal?

No one thinks it strange that the ADDITION of a child is a life-long adjustment.

So, why, why, why is it strange that the SUBTRACTION of a child would also require accommodation for the rest of a mother’s life?

I understand that if you haven’t walked this path, you can’t REALLY know what it’s like-even if you try.

I don’t want you to know this pain by experience.

It’s awful and unrelenting.

What I do want you to know is I am NOT crazy for missing my son. I am NOT crazy for wishing I could turn back the clock.

I am NOT crazy because this devastating, paradigm shifting, unbelievably painful event still impacts my everyday life.

Please don’t treat me like I am.

The best help a friend can offer is a listening ear-no judgement-and a hug that says, “I love you. And I’m sorry.”

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