Twenty-four Hours

I don’t know just when I figured it out, but somewhere in this Valley it dawned on me-NO day lasts forever.

Many feel like they do.  

The day I got the news stretched impossibly long in front of me as calls were made and people came to be wtih us.

But even THAT day ended.  Night fell, the earth turned, and another sunrise showed up on cue.

Remembering that truth is how I manage to keep going most of the time.  I remind my heart that no matter how hard today is, it will end.  I recite the mantra, “No day lasts forever.  No day lasts forever” over and over if I have to.  I refuse to look at the clock and count the minutes-instead I occupy my mind and hands until they pass of their own accord.

Some days are good.  I’m with people I love and doing things that bring joy.

Some days are unbearably hard.  The sorrow and missing that I manage to keep in check most of the time bubble up like lava and consume me with their red-hot pain.

It doesn’t matter.  

Night falls,

the earth turns

and another sunrise will show up on cue.

sunrise brightest

 

Feet of Clay

God is not offended by my human frailty.  He isn’t looking down from Heaven, shaking His head at my halting steps forward on this long, hard road.

we are dustHe understands my fear, my sadness, my longing for wholeness.

But sometimes it’s hard for me to remember that.

I’m surrounded by messages that scream,

“You can do better!”

“Be all that you can be!”  

“Try harder, practice more, do this, do that and you can attain your dreams!”

Even in Christian circles we tend to rank one another based on hours spent in Bible study, Sunday School lessons taught, singing in the choir, serving on committees, showing up at services.

That was the way of the Pharisees-impossible burdens piled high that crushed precious hearts so that they couldn’t imagine a Father in Heaven Who loved them.

That made Jesus angry.

They crush people with unbearable religious demands and never lift a finger to ease the burden.

Matthew 23:4 NLT

He didn’t come to mock my limitations or make light of my struggles.

He came to Shepherd my heart past those very things to see His heart for who He created me to be.

He reaches out and reaches in.  He sings love and courage and hope when I’m desperate to hear it.  

For the Lord your God has arrived to live among you. He is a mighty Savior. He will give you victory. He will rejoice over you with great gladness; he will love you and not accuse you.” Is that a joyous choir I hear? No, it is the Lord himself exulting over you in happy song. “I have gathered your wounded and taken away your reproach.

Zephaniah 3:17 TLB

Reality is this:  I AM broken.  I AM frail.  I AM burdened by this life on earth.  It is absolutely too heavy for me to carry.  I will be crushed to dust beneath its weight.

But He offers to take that burden for which I was never made and replace it with the one perfectly fitted for my shoulders.

His yoke is easy.

His yoke is light.

And He is the One Who pulls alongside me to bear it.

you who are weary come to me

 

 

Repost: Silence Doesn’t Serve Anyone Well

One of the reasons I write is to share my grief experience with others.

I realized when tossed into the ocean of sorrow that of all the things I had heard about or read about, surviving child loss was never mentioned.

Read the rest here:  Silence Doesn’t Serve Anyone Well

Manifesto of the Brave & Brokenhearted~by Brene Brown

I am thankful for Brene Brown.

She has helped me put words to my feelings, helped me see a way forward when I felt there was none and helped me own my story even though it is hard.

I keep her quotes around to encourage my heart and remind me that I am brave.

This is one of my favorites:

manifesto of the brave and brokenhearted

Step By Step

I’m gonna just tell you right now:  If you let your mind wander to the days, months and possibly years ahead you will drown in sorrow.

The only way to make this journey is step by step.  

This one moment, this one breath, this one memory bringing tears to my eyes.  I don’t receive the strength for another moment until I live through this one.

But each moment bravely faced speaks courage to my heart for the next.

Some days I feel empty of hope.  Some days it takes every ounce of will to get out of bed. Sometimes I lie there and think, “Can’t I skip today?”

It’s a genuine temptation.  

And then a still, small Voice speaks to my heart and says, “I’m here.  You don’t have to figure it all out, just make the first step.”

So I do.

track record for bad days is 100

 

I Want to Get It Right

There are lots and lots of things in life where the distance between “good enough” and “perfect” really doesn’t matter.

I don’t aim for hospital corners while making my bed.

I cook without recipes-adding this or that until the taste suits me.

If I walk 8,567 steps or 10,291 steps I am not going to stress about it.

BUT-there is one thing I absolutely MUST get right.

My understanding of God-Who He is, Who Jesus is-matters for ever and ever.

I want to get it right.

I want to hear from the Holy Spirit and understand God’s Word.  I need to figure out the basics even if I can’t fill in all the details because what I believe about Jesus Christ determines whether or not I will join my son in heaven.

I admit that I still struggle with reconciling God’s sovereignty and God’s goodness.  I haven’t come up with an easy answer for why bad things happen in the world-often to people who don’t seem to “deserve” it.

But I am absolutely convinced that God is in control.

He is the Creator and Sustainer of this world.  He rules and reigns from a place of power and glory and might.  He did not make us and then leave us to our own devices.  He is active, here and now.

I trust in God’s faithful, enduring love.

graphic-his-faithful-love-endures-forever

It certainly doesn’t always look like what I think love should look like.  It includes allowing pain and heartache, dark nights and deep valleys.

Some He saves from the fire and others He gives over to tyrants.

But He also pursues me,

woos me,

strengthens me,

and sustains me.

He does not leave me to my own devices nor abandon me to my sin.  He has provided a way where there was no way.  His own Son’s blood is the Perfect and Enduring Sacrifice that gives me access to the Throne of Grace.

And I am convinced that the work He began in me-the work He began in Dominic-He is faithful to complete it.

I don’t get to see the finished product yet.  

It’s frustrating, frightening and painful to wait for it to be revealed.

But I believe with my whole heart that it will be one day.

beauty-from-ashes-clothespin

 

Refuse Shame

I remember the night of Dominic’s visitation-a few of us, including our pastor were there early and prayed together for strength and for God’s Presence.

In that circle of loving friends and family I was overcome with the need to kneel. My body had to acknowledge the fact that my heart was humbled as it never had been before.  I was in the dust and ashes were my food.  

What could be worse?

But in the days and weeks and months that followed, as the fog of disbelief lifted and the reality of pain, sorrow and missing became undeniable, it did get worse. Part of the “worse” was a sense of shame.

A sense that I should have been able to protect my son, keep him safe, make sure he lived-but I couldn’t.

The pain of child loss is often accompanied by shame:

Shame that I couldn’t save my child.  Shame of suicide, addiction, being in the wrong place, with the wrong people at the wrong time.  Texting while driving. Not wearing a seat belt. The shame of missing something. The shame of waiting to intervene.  The shame of pushing too hard.

The shame of just not being there when it happened.

The list is endless…

Often that shame keeps bereaved parents from reaching out, imprisons them in their own minds and sometimes in their own homes.

owning-our-story-and-loving-ourselves-through-the-process

But it shouldn’t be that way.

Child loss is a tragedy, not punishment.

It highlights the fact that I am not in control-and neither are you.  It happens even when a parent or a child does “everything right”.  And some kids survive to old age even when they have done “everything wrong”.  

Shame tells me that I am unworthy of love and unworthy of belonging.

And that is a lie.

It “erodes our courage and fuels disengagement” (Brene Brown) If I allow shame to overwhelm my heart it drives me away from the very help I need to make it through this awful Valley.

I have to shake it off.

I have to refuse it’s cold creep into my soul, toss it out and bar the door so that it can’t come back inside.   I will name it and drag it from hiding for others to see.  

It cannot survive the light of day.  

shame-cannot-survive-being-spoken

There is NO shame in burying a child. 

Grief Brain: It’s a Real Thing! PART TWO: Coping Strategies

So now that you know you aren’t going crazy, what to do?

Give yourself grace-understand that the old you is not the new you.

griefbrain

You will not be able to overcome these very real changes by sheer force of will. No matter how talented or together you used to be, it’s unlikely you can operate on that high plane right now. If you try, you will only exhaust the resources you have left.  

So slow down and make room for how grief has impacted your mind.

talk-to-yourself-as-someone-you-love-brene-brown

There are some basic self-care techniques that bear fruit in every area, not only mental acuity:

  • Eat balanced meals or snacks-It doesn’t matter if you WANT to eat.  Consider that you are fueling your body so that it can feed your mind.  Find a protein bar you like or eat easy-to-make salads or sandwiches.  When blood sugar levels are stable, your mind works better.
  • Get as much quality sleep/rest as possible-This is very hard, I know, when the setting sun brings memories and thoughts that make sleep almost impossible.  But research “sleep hygiene” and apply the techniques that might work for you.  Herbal supplements and teas can help as well as prescription medications.
  • Drink enough water-hydration is so very important and easy to ignore.
  • Limit alcohol and/or other stimulants/depressants -any of which can interfere with your ability to think and remember. (Do NOT stop medication unless you do so in concert with your doctor)
  • Exercise-There’s no need to run a 5K. Just a walk around the block or even around your house can get your blood pumping and providing more oxygen to your brain.
  • Get a physical exam to rule out hypothyrodism, diabetes, heart disease, or any other physical cause for your symptoms.  If prescribed treatment, follow the protocol.

brain-cogs-and-light-bulb

Develop work arounds:

  • I simply admit to people I’m meeting for the first time that I will not remember their name unless and until I use it multiple times, and even then I might forget.  It takes the pressure off so I don’t have to pretend when I see them again.
  • I write down EVERYTHING.  If I put something “someplace safe” I jot down the location in my calendar.  If I make an appointment or need to make a phone call, I write it where I can see it.  If I commit to bring something to a potluck meal, I put down what I promised and when it needs to be there.
  • I ask for help.  Like I said before, if I make lunch plans with friends, I ask that they text me the day before to remind me.  If I need extra time to fill out a form, I speak out-I’ve never had anyone refuse.  If I can’t remember something important, I admit it and look it up.  I have given my family permission to tell me when I’m repeating myself.
  • I maintain routines and habits.  Keys-same place,always. I have a carabiner on my purse to attach them when I leave my truck.  Glasses-same place, always.  Medicines in those little seven-day sorted containers.
  • I use the Internet, mail and telephone calls to expedite things and minimize stressful interactions with people.  If I am going out to a restaurant, I look up the menu online so I’m not forced to make a decision on the spot.  I look up and print directions even though my phone can navigate on the fly.  I call ahead to learn how long a repair will take, if items are available and if my prescriptions are actually ready.  I send letters and cards instead of visiting when I’m feeling overwhelmed.

take-control-of-your-life

Lifestyle choices:

  • I aim for balance:  Harder tasks with easier ones; stressful outings with quiet moments; reading with sewing; outside and inside; work and play.  Switching up seems to help keep me sharper somehow.
  • I don’t overcommit.  When someone asks me to do something, unless it is truly an emergency requiring an immediate answer, I consult my calendar.  If I already have a couple commitments for a week, I beg off or reschedule for another time.  I realize that those working outside the home have far less control over these things but perhaps you might ask your boss for some leeway.
  • I group similar tasks and do one thing at a time.  I find that doing things that require the same skillset on a single day increases my ability to do them well.  Shopping, writing notes, cleaning house are things I schedule for one day at a time.  I am absolutely NO GOOD at multitasking anymore.
  • I’m realistic about what I can and can’t do.  It is humbling to admit that I’m no longer tolerant of small children and large crowds.  I used to be able to handle both.  But I just can’t do it, so I limit my exposure.  I won’t serve in the nursery at church and I don’t attend concerts.  That’s just the way it is now.
  • I plan for laughter.  If it doesn’t happen organically, I seek something uplifting and funny to tickle me into laughing out loud at least once a day.  Laughter helps me cope and releases all kinds of feel-good hormones.  With the world of memes at your fingertips, this is an easy thing to do.
  • I refuse to apologize.  Yes, I might say, “I’m sorry” when I forget someone’s name, but I don’t make it a habit to make excuses for my inability to live up to others’ expectations.  I learned early on that anyone who has not walked this Valley can’t really understand anyway.  It frustrates me, adds to stress and does no good.  So I let my “yes” be “yes” and my “no” be “no”.  I’m beyond being embarrassed.

I do the best I can as long as I can.

And when I reach my limit, I admit it without being shamed.

 

shame-is-the-intensely-painful-feeling-we-are-unloveable-brene-brown

 

 

 

 

 

A Letter To My Living Children*

I never thought it possible to love you more than I already did.

But I do.

photo (20)

Your brother’s untimely departure has opened my heart in a whole new way to the glory that is your presence.  It has made me drink you in like water in the desert.

No more do I take even a moment for granted.  Never again will I be “too busy” to listen to you, to hug you, to greet you on the porch when you decide to make your way back home.

I promised you when that deputy came to the door we would survive.

And we have.

beach-and-family-better

I promised you that I would never raise Dominic onto a hallowed pedestal that obliterated his orneriness and only kept track of his laudable qualities.

I pray I have lived up to the promise.

We are changed-every one of us.

I am so very proud of you for continuing to live.  It would have been easy to give up.  It would have been easy to “live for the moment” and give in to hedonism.

You haven’t done that.

You have had to carry more weight than you should.  I am so very anxious to see how you take this awful  pain and weave it into your own stories-how this dark thread helps define who you become and how you choose to impact your world.

You have lent me your strength when mine was waning.

You have checked on me and loved me and borne patiently with me and with one another when it would have been easier to walk away and try to create a life outside this place of brokenness and vulnerability.

I am always cautious when ascribing feelings and words to our departed Dominic-it’s easy to make him say or feel whatever is most convenient since he’s not here to dispute it.  But I am certain of this:  while he would never, ever have wanted us to bear this awful burden, he would be so, so proud of the way we have supported one another in doing so.

Like always, our family has closed ranks and lifted together the weight that would have crushed us individually.

It’s who we are.

It’s who we have always been.

desimones uab family

*I am absolutely convinced that Dominic is very much ALIVE today in the presence of Jesus.  But for now, I’m denied his daily companionship.

Trying To Be Brave

A few weeks ago I came face to face with a fear I thought I had under control.

Hurrying, one of my kids almost ran a red light with every surviving family member in the car.

In that moment all my fears of losing another someone I love bubbled to the surface.  I reacted.  My child reacted. And ugly oozed out all over the place.

I hated it.  And I was so, so sorry.

I am trying to be brave.  I am trying to not be afraid of what MAY happen and cherish what IS happening.

I love each of my children-the one that has run ahead to heaven and the ones that walk the earth with me.  That love makes me brave.

I will not waste the time I have with them worrying about what MIGHT happen.

I will not allow the enemy of my soul to steal my joy, kill my passion for life or destroy my relationship with my living children.

courage and perseverance

 

It is a lot of work and it’s exhausting.  

But it’s worth the fight.

I won’t give up.